Fourteen-year-old Chun Xia lives with his mother in an extremely poor area of China. When his father passed away two years ago from heart failure, Chun Xia took it quite hard and suffered from headaches, loss of appetite and fatigue. At first, his mother didn’t worry too much. When his complaints became more serious every day, his mother took him to a big hospital in the city of Xian as their area has a serious lack of medical resources. The hospital discovered that like his father, Chun Xia also suffers from congenital VSD in addition to pulmonary hypertension (PH). Congential VSD is not considered a particularly serious heart disease, but surgery can be quite risky when combined with PH. Chun Xia and his mother were quite shocked and upset by this news as they did not have any idea that he suffered from the same heart problems that caused his father’s death.
With hopeful hearts, Chun Xia and his mother traveled to Shanghai in search of medical help. After examining the medical report, the doctors felt that the surgery could be performed, but controlling his PH post-surgery would be difficult. Luckily there is drug called Bosentan that has a positive effect on the PH which is available in Shanghai. However, this drug is extremely expensive. The mother was crushed to learn that she could not afford the medication, and felt that they had no choice but to give up Chun Xia’s treatment.
The doctors felt that it was a pity to give up treatment on this lovely boy, so they contacted the pharmaceutical factory. The factory representative sympathized with them and agreed to drop the price of this drug. But still Chun Xia and his mother are unable to afford it. They have already borrowed quite a bit of money for the surgery and are unable to borrow more, and Chun Xia’s surgery has now been postponed twice. It seems that this drug is Chuna Xia’s one chance for life.
Chun Xia is a big boy, and he understands that there is a possibility that his family may not be able to afford his life-saving treatment. When our manager visited him and his mother, his mother (who is illiterate) was anxious, and her eyes were helpless. She asked Chun Xia to read a letter that they wrote together asking for help from “friends from all over the world.” Chun Xian read half of the letter before he began crying and couldn’t go on.
I should have had the surgery on Monday. That day, I had a chest x-ray, and the doctor said I had pneumonia. What do I do now? The cost of pneumonia treatment will spend almost all of my fees for the heart surgery. If I am cured of the pneumonia, my family won’t have any more money for my CHD surgery. If I am discharged, my last hope is dashed.
Can I only wait for death? Do I have any hope? Despite everything, I want to hold onto my last hope. I want to live. I hope friends from all over the world can help me. I hope you offer your love. I hope friends from all over the world can hear my heart wishes.
I- really- want- to- live!
Love Without Boundaries has heard his “heart wishes,” and our Unity Fund is committed to helping raise the funds for Chun Xia’s medications so that he will be able to have his life-saving surgery. Over $6,000 is currently needed for his treatment, and we would welcome your donation in any amount to help this boy on the cusp of adulthood have a chance to live!