Tag Archives: Cerebral Palsy

A Visit to Shantou Is Like Coming Home

Returning to the Shantou orphanage is always like coming home to me. I have been visiting this orphanage for over nine years, and two of my children spent the beginning of their lives in this facility. This trip was especially poignant to me as the word “changes” kept swirling through my head. There are so many changes in China each year, both wonderful and somber, and my heart felt split in two as it soared with joy at moments but then also crumbled at the increasingly complex needs. Everyone with a heart for the orphaned has to face the reality that almost every child abandoned now has a medical need, and so the issues the nannies face are often immense. The days of orphanages being filled with healthy baby girls due to the one child policy are over, and yet that myth is still perpetuated in news articles and blogs. Read more.

Carly & Tommy: Best Friends Waiting Together

Sweet Carly is a lovely five-year-old girl in the Believe in Me Jingzhou School. You may remember her from her introduction in March 2010 in the blog post “A Day in the Life at Believe in Me Jingzhou,” when Carly was the newest student in school. This precious young girl has cerebal palsy, but she doesn’t let that slow her down! She loves spending her days in school, where she plays with many fun, tactile educational tools such as the knobbed cylinders and triangle boxes. She spends lots of time reading picture story books and loves participating in arts and crafts. While Carly is shy around the teachers, she is a chatterbox with her friends. We have been told by our China manager that she is a smart little girl. Read more.

Fun in the Sun with Tommy

This summer, Tommy and the students at our Believe in Me Jingzhou School enjoyed an outing to an amusement park and Kentucky Fried Chicken to celebrate all of their hard work. When we saw these photos of Tommy enjoying himself to the fullest on the carousel, we knew we had to share his fun with our readers!

According to his recent school report, Tommy has been improving a great deal in the classroom. His favorite subject at this time is math, specifically the Montessori “spindle box” activity. Tommy is a willing participant in class discussion and exercises and plays very well with his classmates. His teachers describe him as lively and optimistic.
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Shawn Michael: LWB’s Featured Child of the Week

Shawn Michael has been at the Lu’An, Anhui, orphanage for nearly half a year. He has cerebral palsy, doesn’t eat very well, and gets sick easily, but he is a good boy. A few weeks ago it was found that Shawn Michael cried seriously when his right leg was touched. LWB’s Orphanage Assistance program sponsors a nurse in this orphanage to provide medical care to the children there. The nurse thought that Shawn Michael might have a leg fracture or cyst within his leg. He was taken to the hospital for an X-ray of his leg, and it was determined that he has inherited Osteogenesis Imperfecta (OI), or brittle bone disease, and he did have a fracture. With tender care he is doing better now, but Shawn faces an uncertain future since his bones are easily broken.
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PT Training Camp: Days Two and Three

We returned to Zhongshan SWI for Day Two of the PT Training. Lisa and I continued to evaluate the remaining children with special needs from Zhongshan SWI and discussed the importance of getting the children up and sitting, even standing for those that showed the ability to be supported in that position. Lisa also evaluated a beautiful five-year-old girl who is unable to speak or chew her food. She really stole our hearts; she has such a gentle personality and is so cute! The staff appreciated all the information Lisa had to share about techniques to stimulate facial and tongue muscles as there is no speech therapy in China. We really appreciate having Julianne with us as a jie jie. When the children seemed afraid of the ladies with the light hair and strange language, Julianne steps right in to play with them, and they seem to forget about us while doing therapy!
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First Day of the 2011 PT Camp

We arrived at the Zhongshan SWI today to begin the PT Training Program for 20 staff members in six orphanages in Guizhou Province. The morning began by providing attendees with an overview of cerebral palsy (CP). Caring for children born with CP can be quite a challenge given that every child born with CP is different. We moved right away to demonstrating positioning and exercise techniques while evaluating eight children from the Zhongshan and Liuzhi SWIs. We were so moved to hear the concerns of the directors and staff who sincerely want the children in their care to have a better life. It was obvious to us that the children are very loved and have strong positive relationships with their caregivers. We also answered many questions about helping children with spina bifida.

The little boy in the top photo was first seen during a March visit to Guizhou by several LWB team members. He also has spina bifida, but he is now walking everywhere!
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Liam’s Luck is Changing

Seven-year-old Liam has faced many challenges in his short life. Not only was he born with Down Syndrome and cerebral palsy, but he also has several heart conditions including VSD, PDA, PFO and PH.  It appears that Liam has a severe case of bad luck, but that may be about to change.  His orphanage in Hefei is willing to submit his file for adoption once he recovers from his heart surgery!

We are looking for donors to help fund Liam’s heart surgery which will ultimately give him a chance for a family.  If you’d like to learn more about Liam and how you could help give him a chance, please visit his sponsor page. You could be Liam’s lucky charm!

Puppy Love for Patrick

It’s difficult to think of anything cuter than a boy and his dog. Our always-smiling Patrick seems pretty thrilled to be holding a cuddly puppy! We actually think that Patrick is the one who looks cuddly.
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John: LWB’s Featured Child of the Week

John is an 11-year-old boy with cerebral palsy who is a newcomer to our Changde Believe In Me School in Hunan province. As would be expected of a child coming into a new situation for the first time, John has been a bit shy, keeping to himself. However, he is slowly coming out of his shell and making new friends. He seems to enjoy music and dancing along with his classmates.
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Tommy Boy

Tommy is a wonderful six-year-old boy who always has a smile to give.   For the past three years, he has been an eager student at our Jingzhou “Believe in Me” School in Hubei and loves to learn.   Recently Tommy has been working on his writing and math skills.  He particularly enjoys writing, as you can see here, and is doing well with learning his characters.
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