Tag Archives: Guizhou

Mario: LWB’s Featured Child of the Week

Mario is a shy little three-year-old who lives in our foster care program in Guizhou. We’re pleased to report that he has recently taken a big step:  he has started kindergarten!

Every day, Mario wakes up at 7:00 and calls his brother to get up with him and get ready for school. He really seems to like going each and every day.
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The 2016 Cleft Medical Exchange: Day Five

We had another great day in Kaifeng with eight more children receiving surgery today. We’ll start by telling you about the children who are orphaned first, and then introduce you to some of the wonderful rural families we were honored to help with medical care.

As we mentioned yesterday, four of the little boys on today’s OR schedule were from the Kaifeng PT Center, which is a government-sponsored project run by one of the past directors of the Kaifeng orphanage. Read more.

The 2016 Cleft Medical Exchange: Day Two

It was a wonderful Monday in Kaifeng, our first OR day of the week. As our team arrived to the hospital this morning, they were greeted by the same sweet faces as the day before, but luckily with a little less panic and stranger danger than on Sunday.

The medical team gathered together for morning rounds, making sure that there were no developments overnight that would alter the surgery schedule. Thankfully, green lights were given by the physicians for all the kids. Read more.

The Twins Have Arrived!

We are so happy to report that Harley and James, the conjoined twins from Guizhou province, have now arrived in Shanghai for their upcoming (and very complex) separation surgery. It has most definitely been a long journey for them, with a lot of unexpected twists.

conjoined twins 2.18.16
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Love For Conjoined Twins Harley and James

Conjoined twins Harley and James have been released from the hospital to wait until the full amount of funds have been raised for their surgery. As of now, the surgery to separate the boys is scheduled to occur at Fudan University Children’s Hospital in Shanghai on February 17 if funding is in place — right after the end of the Chinese New Year celebration.

conjoined twins with grandma

Harley and James’ parents are from a remote farming village in Guizhou, which is a long journey from Shanghai. After the boys were discharged from the hospital, their parents traveled with them to Guangxi province, to stay while they wait for news about the surgery.  To save money, they found a house that is scheduled to be demolished, and they will live there until Chinese New Year is over.
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An Update on Baby Luna

We are so happy to report that Luna continues to slowly be weaned from oxygen following her heart surgery in December.  Doctors have cut the amount of extra oxygen she is being given by half, and she is definitely showing much more energy and smiles.

IMG_9898Luna interacting with her nanny

Over the weekend, she was able to remove all of her tubes for a short time to be carried up and down the hallways, which she enjoyed a lot.  We are so grateful to everyone who has been lifting her up and celebrating with us as she gets stronger day by day. Read more.

An Update on Conjoined Twins Harley and James

First and foremost, we want to thank everyone who has donated to help Harley and James, the adorable twin boys born conjoined at the end of October. Harley and James’ parents are extremely young  — just 20 years old — and are from a small village in rural Guizhou. The boys are joined at their pelvis area, sharing one liver but thankfully having two bladders and four kidneys. The operation to separate them is expected to be extremely complex.

Conjoined twins
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Breast Milk for Baby Glen

This fall, a baby was abandoned in Guizhou with a terribly bloated abdomen. His orphanage contacted us for help, and we agreed to get him medical care. We moved that baby, whom we named Glen, to the hospital.

Glen 9.9.15

Glen’s doctors originally thought that he had a bowel obstruction, but then they realized he just has severe allergies to baby formula. Read more.

Help for Conjoined Twins From Guizhou

At the end of last October, a very young mom from Guizhou went into labor. Later that evening, her life changed forever when she gave birth to twin baby boys. Very quickly, doctors discovered that the tiny boys had been born conjoined, an extremely rare condition which occurs when a fertilized egg only partially splits into identical twins. In the case of her sons, the babies remained joined together at the abdominal/bladder area.

Conjoined twins James Harley 1.16
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Matilda: LWB’s Featured Child of the Week

Meet Matilda — a girl who really knows how to wear a hat!

Matilda2

Just nine months old, sweet Matilda is living in Tongren, Guizhou province. Her foster family makes sure that she is snug and cozy whether she is inside or outside. and it would appear that she has a number of stylish beanies to keep her head warm. Read more.

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