Tag Archives: Guizhou

Love For Conjoined Twins Harley and James

Conjoined twins Harley and James have been released from the hospital to wait until the full amount of funds have been raised for their surgery. As of now, the surgery to separate the boys is scheduled to occur at Fudan University Children’s Hospital in Shanghai on February 17 if funding is in place — right after the end of the Chinese New Year celebration.

conjoined twins with grandma

Harley and James’ parents are from a remote farming village in Guizhou, which is a long journey from Shanghai. After the boys were discharged from the hospital, their parents traveled with them to Guangxi province, to stay while they wait for news about the surgery.  To save money, they found a house that is scheduled to be demolished, and they will live there until Chinese New Year is over.
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An Update on Baby Luna

We are so happy to report that Luna continues to slowly be weaned from oxygen following her heart surgery in December.  Doctors have cut the amount of extra oxygen she is being given by half, and she is definitely showing much more energy and smiles.

IMG_9898Luna interacting with her nanny

Over the weekend, she was able to remove all of her tubes for a short time to be carried up and down the hallways, which she enjoyed a lot.  We are so grateful to everyone who has been lifting her up and celebrating with us as she gets stronger day by day. Read more.

An Update on Conjoined Twins Harley and James

First and foremost, we want to thank everyone who has donated to help Harley and James, the adorable twin boys born conjoined at the end of October. Harley and James’ parents are extremely young  — just 20 years old — and are from a small village in rural Guizhou. The boys are joined at their pelvis area, sharing one liver but thankfully having two bladders and four kidneys. The operation to separate them is expected to be extremely complex.

Conjoined twins
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Breast Milk for Baby Glen

This fall, a baby was abandoned in Guizhou with a terribly bloated abdomen. His orphanage contacted us for help, and we agreed to get him medical care. We moved that baby, whom we named Glen, to the hospital.

Glen 9.9.15

Glen’s doctors originally thought that he had a bowel obstruction, but then they realized he just has severe allergies to baby formula. Read more.

Help for Conjoined Twins From Guizhou

At the end of last October, a very young mom from Guizhou went into labor. Later that evening, her life changed forever when she gave birth to twin baby boys. Very quickly, doctors discovered that the tiny boys had been born conjoined, an extremely rare condition which occurs when a fertilized egg only partially splits into identical twins. In the case of her sons, the babies remained joined together at the abdominal/bladder area.

Conjoined twins James Harley 1.16
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Matilda: LWB’s Featured Child of the Week

Meet Matilda — a girl who really knows how to wear a hat!

Matilda2

Just nine months old, sweet Matilda is living in Tongren, Guizhou province. Her foster family makes sure that she is snug and cozy whether she is inside or outside. and it would appear that she has a number of stylish beanies to keep her head warm. Read more.

Cornelius: What Will His Future Hold?

This past month, we’ve been sharing quite a bit about baby Cornelius, a little boy who has completely grabbed onto our hearts.

cornelius santa hat

Cornelius was born with biliary atresia, a life threatening liver condition. Several weeks ago he had the Kasai Procedure, which is the only surgical option available to stop damage to his liver. This operation is successful in around 40-60% of babies. As you can see in these photos, Cornelius’s eyes and skin are still quite yellow and jaundiced post-surgery, which indicates that irreversible liver damage is still a sobering possibility. The harsh reality is that in order to live, Cornelius may need a liver transplant…and before he can have a liver transplant, he will need to be adopted internationally. Read more.

Left Behind: One Boy’s Story

Dimen Guizhou

Yesterday I wrote about my visit to rural Guizhou this past summer. The final day of our time there happened to coincide with the annual Miao dragon boat races, one of the largest Miao festivals held each year. Over twenty different villages come together for this special day, each arriving in their own unique traditional dress, so of course we wanted to go. Read more.

A Visit to Rural Guizhou

Guizhou Miao bridge

This summer I spent most of July visiting our programs in China, and I spent one week of it in the southwestern province of Guizhou. This province is still one of China’s poorest economically, but I feel one of the richest when it comes to natural beauty and diversity of culture. Read more.

Mind, Body and Soul: YOU Made This Happen

Educating the mind without educating the heart is no education at all. ~Aristotle

MBSupdate5.15

What an incredible experience our Mind, Body, and Soul campaign has been! It all began with someone asking to help a small, remote school, in the village of Yashui in Guizhou province. This one inspired idea turned into a huge campaign that went beyond everyone’s wildest dreams. Read more.

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