LWB Community Blog


Share Your Heart With Valerie

Valerie is the beloved baby in a family of five children. She was born with VSD and PDA heart defects, as well as Down syndrome. When her mother received her youngest’s difficult diagnosis, she was overcome with sadness and worry. She feared for Valerie’s life, for how and where they could even get the complicated surgery in Uganda, and for how she would pay for it.

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Share Your Heart With Jackson

Learning that their son had a serious, life-threatening heart defect that would require open-heart surgery was a complete surprise for Jackson’s parents. Their three-year-old looks so healthy that it was difficult to accept. If Jackson doesn’t receive the partial AV canal repair he needs, his heart will fail.

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Kinley: A Heart That Can’t Wait

For baby Kinley, every day matters. She is in a short window of time when a complicated heart surgery could save her life. If too much time passes, too many days go by without repairing her heart defect, she will most likely not survive.

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Five Little Hearts Healed

Several weeks ago, five little heart patients and their parents traveled to India for their chance to receive life-saving cardiac surgery unavailable to them in Uganda. After settling in and having pre-surgery testing and consultations with the surgeons, the first child to go for surgery was Ruthie.

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Five Little Heart Patients Travel from Uganda to India

Yesterday, five little Uganda heart patients boarded a plane and traveled to India to prepare for life-saving cardiac surgeries that are unavailable to them in their home country. Their parents have spent the past few months gathering medical reports, passports, visas, and taking COVID tests. We hope you’ll follow along with us for the next few weeks as we get to know these heart warriors and their stories.

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Stories of Hope: Joyce

Last February, we introduced you to a tiny toddler in desperate need of help. Little Joyce had been born with multiple medical needs. Almost immediately after birth, she was whisked away from her mom to undergo an emergency operation for anal atresia. Days later, she was diagnosed with a complex heart issue as well — an atrioventricular (AV) canal defect. This cardiac condition involves a large hole in the very center of the heart chambers, along with faulty valves. Without surgery, Joyce’s heart would eventually fail.

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Hearts Healed in Kolkata: Devon, Jeremiah, and Joyce

For ten long months, the seven Ugandan heart children have been waiting for their chance to have their hearts healed. This week, the healing began.

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The First Few Days in Kolkata

They made it! Our intrepid group of travelers from Uganda — 7 children, 6  moms, 1 aunt, 1 nurse, and 1 social worker — arrived safely in Kolkata and got settled into their apartments, which are thankfully all on the same floor and share some common areas for the children to play and for the moms to chat.

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Wheels Up! From Kampala to Kolkata

It was wheels up for seven children from Uganda today! After 10 months of anxious waiting during the COVID lockdown, multiple visa applications, canceled plane tickets, endless red tape, and medical tests, the children finally took off for India where they will now have their chance for long-awaited heart surgeries. Our group of 7 children, 6 moms, 1 aunt, 1 nurse, and 1 social worker all received their negative COVID test results in the nick of time today while they were waiting in line to check in. Phew!

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Uganda Pediatric Surgery Mission: Day One

As the morning sun rose over Mbarara, Uganda, the LWB team made their way to Holy Innocents Children’s Hospital.  A week of healing for so many children was about to begin, and final preparations were needed to ensure this first pediatric surgery mission would be a huge success for the kids.

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