LWB Community Blog


Share Your Heart With Valerie

Valerie is the beloved baby in a family of five children. She was born with VSD and PDA heart defects, as well as Down syndrome. When her mother received her youngest’s difficult diagnosis, she was overcome with sadness and worry. She feared for Valerie’s life, for how and where they could even get the complicated surgery in Uganda, and for how she would pay for it.

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Kinley: A Heart That Can’t Wait

For baby Kinley, every day matters. She is in a short window of time when a complicated heart surgery could save her life. If too much time passes, too many days go by without repairing her heart defect, she will most likely not survive.

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Stories of Hope: Frannie

We first met four-year-old Frannie back in June. This sweet little girl had been born with a large Ventricular Septal Defect (VSD) in her heart. With this medical condition, blood flows through the lower chambers of the heart into the lungs, forcing them to work harder. Over time, a large VSD can lead to the development of pulmonary hypertension, stroke, and sadly even heart failure. Frannie’s mom had written an emotional letter to LWB asking for help for her daughter. She told us that Frannie had been weak since birth, prone to fevers and colds, and often needing to be rushed to the hospital when she fell ill. When a doctor finally told the mom this year that Frannie had a heart defect, she said that her world fell apart.

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Stories of Hope: Ryder

Why hello, Gerber baby. Look at you with your squeezable cheeks, bright eyes, and a hint of a double chin.  Look at you all comfy and safe, with warm blankets, loving nannies, and arms ready to hold you. What a journey the past year has been, and how we wish you didn’t have to make it.

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Hearts Healed in Kolkata: Devon, Jeremiah, and Joyce

For ten long months, the seven Ugandan heart children have been waiting for their chance to have their hearts healed. This week, the healing began.

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A Good News Update on Elena, Ryder, and Tobias

This October, three beloved residents of our China Healing Home were hospitalized — one for an unexpected heart surgery, one for pneumonia, and one for a planned colostomy reversal. Since these children have such an army of supporters, we wanted to share an update on how all three were doing.

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Jeremiah: 5 Hearts, 7 Days

Jeremiah was Joselyn’s first baby.  While pregnant, she spent her days dreaming about her baby’s future, praying over life, and wondering whether she’d be blessed with a boy or girl. As it turned out, though, her birth story was nothing like she had dreamed. Jeremiah’s father abandoned Joselyn at the hospital. She has not seen him again, and he has never seen his son. Those first days with her child marked a difficult turning point in her life. She left the hospital as a single mom — a single mom of a baby with medical needs.

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Lianah: 5 Hearts, 7 Days

Lianah’s mom has never been out of Africa, or even Uganda, but she is ready with her brand-new passport.  The prospect of traveling outside her country is a frightening one, but Robinah is ready and willing. Her daughter, Lianah, has a very fragile heart.  She just turned one, but at 14.5 pounds, she simply is not gaining enough weight. Her breathing is heavy and labored. She’s in urgent need of surgery.

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We Stand With Families: Mary Martha

When we first learned of five-year-old Mary Martha earlier this year, she had become so weak from her complex heart defect that she could no longer walk for more than a minute or two at a time. Mary Martha’s life was truly in danger, and her mother was desperate to find help. Surgery in Uganda was not an option for Mary Martha due to the severity of her heart condition (Tetralogy of Fallot), so when she was accepted for surgery in Israel, we all celebrated. 

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We Stand With Families: Oliver Then and Now

Last year, the hearts of everyone in our LWB community were touched by the plight of Oliver, a little boy born with Down Syndrome. He was adored by his family, who became alarmed by his frequent coughs, breathing distress, and blue lips. Doctors diagnosed Oliver with a severe heart defect. but the hospitals his mom reached out to for help all said they wouldn’t take his case due to his special need.  His mom refused to give up, however, as she believed her son was worthy of being healed.

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