LWB Community Blog

Gracie: A Light in the Heart

…beauty is a light in the heart. ~ Khalil Gibran

I had the privilege of holding Gracie, who has Treacher Collins Syndrome, almost exactly one year ago, when she had a bone conduction hearing aid, generously donated by Oticon Medical, fitted on her head for the very first time. (See last year’s post, “Gracie”). Although two years old, Gracie was most comfortable being held by me like a younger baby. It had to have been new and confusing for Gracie to start hearing sound, especially with all the commotion in the orphanage with our visit that day. Read more.

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We first learned about little Gracie when she was enrolled in one of our nutrition programs in Guangdong Province. As soon as we were sent her photo, we began to get opinions on how to best help her. We learned from several physicians who looked at her pictures that she was most likely born with a condition known as Treacher Collins Syndrome.

Children with this condition have issues with their facial structure, but they usually have normal intelligence. We first posted Gracie’s photo to our Facebook page several months ago, and the response was just incredible. Read more.

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