LWB Community Blog


Lianah: 5 Hearts, 7 Days

Lianah’s mom has never been out of Africa, or even Uganda, but she is ready with her brand-new passport.  The prospect of traveling outside her country is a frightening one, but Robinah is ready and willing. Her daughter, Lianah, has a very fragile heart.  She just turned one, but at 14.5 pounds, she simply is not gaining enough weight. Her breathing is heavy and labored. She’s in urgent need of surgery.

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We Stand With Families: Violet and Ophelia

In our efforts to support impoverished families who are desperate to find help for their critically ill children, LWB’s Unity Initiative provides life-changing surgeries for children in great need. Today, we are standing alongside two families from rural China.

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Jackie’s Heart Surgery

Jackie, an eight-year-old little girl with severe heart disease who was featured here previously (“Joyful Jackie Needs Our Help”), had her long-awaited heart catheterization. The good news is that the doctors in Shanghai have determined that Jackie’s heart is operable.

Jackie 3-17-14 2 small

She was diagnosed with severe Tetralogy of Fallot (TOF), Left Ventricular Dysplasia, and Patent Foramen Ovale (PFO), and the doctors said they have not seen a heart like Jackie’s before. Jackie’s heart surgery will be complex and risky, but we are thankful that she is in good hands at Children’s Hospital of Fudan University where we have sent many children for complex surgeries.
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